The “Smart” Factor

Discussing intelligence with me unlike the vast other autistics that can speak for themselves, is a touchy subject. I personally don’t think its anyone’s business to know what their IQ score is or what they know about or don’t know about.

I try to remain modest and keep my feet on the ground as I try to reach for the stars. Some won’t take the late Casey Kasem’s advice and go the polar opposite. I do not want to say I “play dumb” but I have to be honest: because if I am so good, am I too good to fail? I might me smart enough for college but may not be emotionally competent or have the stamina and drive due to meeting demands and having to explain my autism to every professor in the beginning of every class so I god forbid don’t be plastered as a fool.

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Health Issues of being a Hopeless Autistic

Since my teenage years, my health resulted in two major issues (since resolved)

  • Severe acne, (due to a large dairy intake), which resulted in migrating away from day to day dairy intake, to the infamous acne medication which can cause massive issues if you accidentally knocked up a woman (which I’m forgetting the name and the FDA program for a moment)
  • A case of an underbite. My mother has kicked herself for not addressing the problem sooner, and this also caused my teeth to be worn because of grinding at night. Regardless, we waited to get a mouth guard till I went on a surgery that moved my upper jaw forward along with a second round of braces. This also rebooted my confidence and gave me a smile that people remember me when I was younger. The underbite (or TMJ) made my face look very different. While the surgery was for substance, not worrying about “jaw clicking”, etc., this was necessary.

Both cases were from my father’s genes/side of the family. I’m not going to finger this on the father I have no idea who the hell he is, and not the diet, that is stereotypical autistic diet, but more of what happened in 2004 to 2008.

I was on some medications I shouldn’t had been on to begin with. The medications caused me more anxiety and paranoia, that I feel had a contributing factor to why I was not developing like my other teenage peers. The fear of messing up, the fear of being targeted for mistakes, the fear of being a creep among remaining in one piece for 7+ hours on weekdays factor in my legitimate case of autistic behaviors had perhaps 80% of the physical damage on both the acne and underbite – again even if it was genetic from my father. 

I’ve made a lot of notes from recollection of those painful years (in some cases the worst years of my younger adult life) to convert that energy from pain to preventable measures. And those doctors are well aware of that.

Where I am going at is despite all the analytical gathering I’ve complied and made conclusions; of if I changed my diet, laid off medications, and alike, that I wouldn’t be where I would become. No, I do believe a very oppressive, and depressive support system, that was “support” in legal name only had a lot to do with my regression. (And no, I’m not talking about just the regression of my first 16 months out of school ether.)  I’m almost as smart, bright or functioning as some of my peers of 10 years ago today. I could’ve had a brighter future if it weren’t for being in a system where people had no business working in.

These treatments were very expensive and luckily my mother’s healthcare plan had me in the system because of my “pre existing conditions” that basically, in my mothers recollection began months after birth.

Estimates of an autistic’s lifespan for services and medical expenses alike will average $2 to 3 million dollars. Do I want to be a million dollar man? No. If you put adequate supports with people who really mean what they are doing, professionals who only care about the students when they are “on the clock” and aren’t just following the robotic SOPs, and poor planning in logistics, etc., maybe some people wouldn’t need to go to Boston and stay a few nights or go into a very complex anti acne treatment. Maybe my teeth wouldn’t be as short as it is.

Of course, my solution to the problem is, love, respect, happiness, and mitigating problems over “curing” but of course showing respect to students would be “unprofessional” as they have to be the control freaks because by law that’s what they get paid to do, destroy your dreams “say no” because “you’ve never heard ‘n’ or ‘o’ too many times” and other BS which needs to be destroyed.

“Ableism”, Trouble Making, and you people have a life?

2017 Update:  I was on other parts of social media at this time too. There are many people who have higher functioning autism that you can’t tell them and a special-snowflake or a Social Justice Warrior apart. Prior to 2016, ether SJW or special snowflakes were not in the lexicon. 

The common problem with any advocate (including the anti-vaxxers is the ability to run away from their problems from time to time. Being razor sharp on such issues all the time is perhaps the very same reason why there is frivolous cases of “ableism” here and there. 

The problem is so many, they do not have a life. Life other than throwing rocks at opposing’s windows. 


Before I start, I should disclose, that I do feel that I myself, and perhaps others have become a victim of being discriminated by “ableism.” These Asperger’s types have gone so far to make “ableism” to be put on steroids. While there is discrimination, and abuse, there are more healthy ways instead of using University type of language in the tone of anger. I’ll even say for myself, it may not make me go anywhere…which is why I try to redirect the energy to reform. Oh I’m not sure if “reform” is an OK word.

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The State of Affairs for Autism and Relationships

There is a bunch of problems going forward for the next five to ten years for autistics and the “leadership” thereof about relationships and building friends, etc., etc.

To go into further detail of that statement; we face problems such as trying to fit every possible individual into one unified group instead of unifying 1 and 88 people with autistic or pervasive developmental disorders; secondly the research and assessment (or diagnoses) often compares us to the normal functioning peer groups; which is also an unfair and inaccurate portrayal to the autistic community.

There are a bunch of people who go around the world to speak about autism, to lecture about the subject or even speak badly (even with it being unintentional.) This problem is also a multi pronged issue too. One is the lack of editorial judgement when delivering these messages to the public; secondly the medium is the message; especially in the world of the Web and social media; and how the people take these messages. I’ve said in the past that for a long time people in the Millenial generation (born from 1977 to 2001) were the most intolerant generation of people with developmental disabilities; however that number is slowly going down – but not a lot. The problem here, is those numbers are becoming tolerant because of a career path they have chosen, not really because they want to be tolerant from the heart.

And the last point is what becomes the most dangerous part for ANYONE with autism; the message, or the medium may mislead these future professionals of the special needs industry; there is still some mixed messages that all autistics are mute and dumb, and often they are lost little bastards; and often its boys; because its only boys who are bad; and its only boys who are into science and math; and again guys are socially retarded; and that all autistics shall not have a life like everyone else because of their alleged social dysfunction; and they really should be friends with their neurological peers; and shall not even have the chance of getting married and having offspring that might reproduce another autistic.

The entire boldface was the subliminal or innuendo messaging of what is taught in college, or in professional development (bitter people training.) There is a lot of psychobabble about “social pyramid”, “social capital”, “social this” or “social that”. And many of this BULLSHIT has anything to do with social skills!

So in closing, the state of affairs for autism and relationships are bleak and will have a dark future. Not because “progressives” want to make a movement for change and acceptance; its really for people who want to be career mothers or career slanderers to make blaintely false and misleading statements that all autistics are bad, all autistics should be sent to Laconia or a state that still has a state school for developmentally disabled people. And yet we have to settle with the fact of “they are being honest” and “they are telling the God honest truth” but yet if I make a “God honest truth” I’d be charged for hate speech even if there isn’t a  hate speech law in my state.
The only option is to settle with the “facts” with the hopes these people will die to hell sooner rather than later.

The Pursuit of Happiness

I had a meeting with my support team for my services earlier yesterday. I want to keep such sensitive information private, since I do not want to exploit such special needs services. Part of it is  such a political drama over the last few years. The Great Recession hasn’t helped the manners. However, the New Year is coming, and I am trying to survive a day to day live meanwhile having to deal with more and more accountability and additional people-pleasing. This New Year mentality is starting to become something I’m not looking forward to.

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Would one be willing to fall in love with ASD?

I’ve become more and more skeptical about any futures of being in love. I’ve never fallen in love with anyone, because there was no girl that was willing on her part to understand me and accept me for who I am.
Let’s try to see if a random girl could handle the following?

  • would she be willing to deal with someone who can be messy? (I explained part of that earlier today)
  • would she be willing to hear one pace around and be anxious at times?
  • would she be willing to hear about things she could not give a shit about?
  • would she be willing to hear about things she could not give a shit about – in a looped fashion?
  • would she be willing to deal with someone who sometimes doesn’t like to be too close to someone? (well I never could touch a girl -because that is more offensive, than a girl touching someone like me!)
  • could she handle my constant anxiety attacks?
  • and how could she handle someone who is unemployed and living with his mother? That turns off a lot of girls, who many in the 26 to 30 range have completed college and are making a HELUVLA lot more than what I should be making if I was “normal”!

I’ve asked the question, would a girl date someone with autism on other parts of the Web and got disappointing results.  I go and people watch, I try to flirt, only 1 and 50 random girls do that, Then trying to talk to a girl – its like – how in the hell can I talk to one and see if there is something? I’ve explained a week ago about another cutie I had written about, and finding out that painful answer.
Oh, I’ve gotten Facebook posts asking why just date someone who is autistic herself? Well, the cases are well male biased, and if there are any, they are likely taken since she will probably be in a relationship with an autistic/PDD counterpart. That doesn’t work out here. Same goes to all the ever so growing jobs for “paraprofessionals” in the twentysomething crowd. If they deal with them on the clock, do you think they’ll fuck with one literally off the clock? Thought so.
There are so many reasons why someone like me won’t be able to fall in love, the love is turning into hate because love can only work for so long, hate can be effectively eternal.

Living up to High Standards

Part of my “low self esteem” is partially because I am not up to par with my peers. I don’t want to be comparing myself to someone my own age, etc. but I am not. I have denied that for many years that I am not like my peers.
I’ve seen the alleged over-excessive content on Facebook, and even on the dating websites. I feel I can’t live up to them for them to accept me. This isn’t just a potential girlfriend, even a potential friend.
Here is my situation:

  • I come from a lower class family, that grew up in an upper class town
  • I have a high school diploma, and no experience with higher education
  • As I had traveled domestically in my teenage years (California, Texas, New York, D.C.) some of my likeminded groups have traveled the world. I have – actually seen the Mexico Border when I was in San Diego, and I have been near the Canadian border going on I-89 corridor when I was 6 or so.
  • I obviously didn’t come from a privileged family, many peers (at least in my geographical area) are
  • Given my autism, I am smart, but not in the same intellectual level as some of my peers, some would obviously think I am just odd in some of my interests
  • I live in an area where there are many people younger than I am and many people older than I am, so the middle twentysomething crowd is limited, because of the high COL or Cost of Living. Some of my peers would prefer to live in Nanny-towns like Boston, New York or even LaLa land or Florida, areas that also have the sex appeal of a highly stylized locale

So background aside, lets go to the smaller things

  • The art that I do  I suppose is decent, but probably not museum material (and I am fine with that)
  • Some may say its not fully dimensional. Maybe not proportionate enough, or I use plain ol pencils and not the snootty strength
  • Sure I may know some tech things, but don’t expect me to program C++ or code in Pearl, or do CSS to design webpages. Yup I am dumb on that regard. Sure I may know some telecom stuff, but not ask me how to do a diagram on how TDM works vs analog, vs IP vs. video or so on.
  • I don’t like going out and doing much things for fun. I’d rather be at home, doing work on my machines or watch the Fox News Channel or watch some boring documentary on TV. I don’t like distractions that much, because it detracts the attention of the pressing issues. My DNA is programmed to be vigilant (always alert, always on.)

I’ve also mentioned other concerns before such as:

  • Having odd interests for straight males like fashion or art (yeah I feel gay for doing art)
  • the ability to be around laid-back types of people, because I am somewhat of a tight person, because I just can’t stop and have fun in a depressing time and place.

Lastly, if I wanted to go to college, or get a decent job and to get the friends and future girlfriend, they all seek someone who needs to be responsible, compliant and needing credentials (whether or not its necessary – chicks and clueless bosses want that “piece of paper”) in order to be accepted in a privileged world.
Then I have to be worried about being accepted with the other’s social circle, since after all its not about them, its about his groups of buddies too. I can’t have any types of relationships with anyone if the others would not accept me and backstab behind me. Oh, did I mention the “man-child” stereotype, where men just want to use gaming consoles all day long or other “childish” behaviors that doesn’t constitute as “childlike” since the latter is a chronic issue while the former is plain ol immaturity?
The holiday season is coming fast this time around, and I am dealing with personal issues on top of having the worst year I have ever had; and I don’t have backup support system, since some of them went away in the summertime, and my mother needs to care for my grandmother, and my other family members I choose to abstain; leaving a handful of other people to take load of my day to day life.
I am lost because I have not had that partner in crime figure in a long time. I am in a desperate need to find one, and just someone who I don’t feel like I am a bothersome to.
With all of that – my conclusion is I can’t compete against people that area actually better than I am, because I am not privileged, not smart enough, not experienced enough, and I am a childish individual.
I feel so proud living life…
*

When I see people in wheelchairs…

Its like I wished I was them.
Every disability, whether its mental, physical, deaf or blind, they have such higher social status and acceptance level, its all good.
…but My God, if you look like an odd ball, and you appear to be a loner and you have a developmental disability, its like living in real hell! The world is so sick and fucking perverted its not even funny!
I can’t imagine what they go through (though I don’t cry and feel bad) but I sure as hell cry and feel bad for myself because developmental disabilities is apparently “still new” to understand never mind barely getting to the general acceptance level.
I don’t want to be one of those people living by their label even if I come off as such. But it really hurts me that every other disability is accepted (read: GENERALLY) and someone like me with an autistic disorder is not being accepted and people like me are treated as a imitate object like the wallflower.
Hell, I don’t call myself or this blog “The Forgotten Autistic” for nothing. I am BEING FORGOTTEN in society!

(Ill)legal Drugs: GlaxoSmithKline gets thrown into the slammer

The Government press charges against the company, but doesn’t press charges against anyone who was involved.

Glaxo was plead guilty in a criminal charges for misleading the government for various antidepressants. Now I find this funny, that they a) get criminally charged, b) they have to pay the Government about $1 billion for criminal fines, but yet no one goes into the slammer. Hey, Presidential Candidate Romney says “People are business”, does that ring true to Glaxo? Oh wait, they are a big business, Romney was referring to the small businesses!
In anyway, in Tuesday’s Marketplace section above the fold in The Wall Street Journal,  GlaxoSmithKline had severely mislead the government of the the legal use of the drugs. They were, according to the Journal:

  • Paxil
  • Wellbutrin
  • and the diabetes drug Avandia.

The Journal reports that the costliest health care fraud cases has been the biggest in many years. The U.S. Government had found the company guilty as “the company piling doctors with perks such as free spa treatments, Colorado ski trips, pheasant-hunting jaunts to Europe and Madonna concert tickets” that the Justice Department said
Quoting a paragraph from the Journal:

“At a news conference on Monday, and in documents posted online, the government said Glaxo spent six years – 1998 to 2003 [sic] – unlawfully promoting Paxil for patients under 18 when the drug wasn’t approved for non-adults. It said Glaxo helped prepare an article published in a medical journal in 2001 that falsely reported Paxil had proven effective at treating depression in children in a clinical trial when the trial showed no such thing.”

In reference to the other non-authorized purposes, the government accused that Glaxo had mis promoted Wellbutrin,  “approved to solely to treat depression – for number of other reasons” such as another Viagra! The Journal quoted the government said “Glaxo sales representatives sometimes referred to Wellbutrin as ‘the happy, horny, skinny pill’ as to remind doctors of the unapproved uses.”
GlaxoSmithKline, PLC had to pay another $2 billion US dollars to to cover civil penalties such as misleading Medicaid (a US Government agency and program, hence the fines) that had mistakenly misauthroized the uses of the drugs.  Additional fines included kickbacks to doctors to prescribe nine different drugs, according to the WSJ report.
In a side bar, the Journal quotes the “76-page complaint”.

Promoted Wellbutrion SR as an antidepressant, to treat obesity or sexual disorders. Example: Hired a PR firm and paid [TV’s] Dr. Drew Pinsky to ‘build buzz’ for off-label uses”
Marketed Paxil, an antidepressant, as safe for children, despite trials that raised concerns about suicide. Example: Give free samples to child psychiatrists”

I added the boldface
Glaxo had agreed to go into a Five Step Program, seriously they need to do a “five year ‘corporate integrity agreement’ in which it pledges to specific behavior”  to change various policies such as compensation plans and show their financial statements post-charges and show where the money is going.
Takeaway
What drives me nuts, is why can’t the US Government not criminally prosecute “people” instead of just the company? Why did no one blow the whistle or get “cooperating witnesses” or get “bagmen” to ambush them. (Being from Boston, I know about mobs inside and out – as an outsider of course!)  Why didn’t the government go after the doctors who were involved in favors and didn’t get them prosecuted? This is really a sick problem, and the free market has been abused, and I really wished this was taken even to a higher level of criminal prosecution, really in the sense of throwing people into federal prison for life! People had actually died because of the suicide (a lawsuit occurred with another company I can’t remember the details.)
This is what we call “corporate prostitution” – pay someone to suck up another in order to lure what the doctor wants. What’s worse is how a doctor’s office is whored with those tissue boxes, pens and oh I can’t say any more, because that’s going to be another post alone!
In all seriousness, this is a huge issue. Paxil was given to many children, and many with PDD, HFA, Asperger’s in the late 90s and they became very unstable, more unstable than not being on Paxil. I can disclose that I am currently on Welburtrion, but the first drug I had been on was Paxil. I’ll tell you that I had countless suicide attempts, and many aggressive episodes, that I suffered with hyperventilation, especially during restraints (the ignorant/arrogant staff thought because I was fighting with them during the restraint holds, was the cause. ) Not only those cause issues, but the worst case was that I had no eyebrows or eyelashes as I had plucked them out -for a crazy reason, this medicine gave me some weird side-effects.
Part of my middle school years were tainted because I was on drugs that now were – actually illegal to take. I also was dealing with a neurologist who didn’t understand PDD type of children, but yet I went through various doctors, and my psychologist (who is a prominent voice of autism, but doesn’t posses a M.D. background) was actually giving my mother and I recommendations for various medicines, that she shouldn’t been suggesting to use period given her PhD background.
Medicine isn’t the total solution, and I will explain more later, but this is a good starting point to discuss the drug industry, the “doctors” and the smartasses of the autism community.
If you interested in this story, this appeared in Tuesday’s Marketplace section of The Wall Street Journal. I quoted directly from the print edition with my dictating skills which is good to do with reading and typing skills.

Autism Awareness Month: The Asperger Syndrome vs Autism debate

I want to turn the attention by going into the wayback machine to 1994.
In the early 90s, when I was getting several evaluations for diagnosis because I was such a misfit, I couldn’t fit into the proper “label”. In about 1994, around the time the current DSM was in the process of being published, my SPED case manager had given my mother the following handout about Asperger Syndrome. She had said to her that “Steven doesn’t fit but there are some similarities” like statement. Again, this was in the early 90s, way before autism, AS or whatever disorder or disease became into the mainstream.
Thanks to modern technologies such as a low grade OfficeJet machine, I can scan in documents from the ancient past and with auto OCR technologies, in a few minutes I can get PDF with searchable and editable text. I am going to copy and paste the document in its entirety since the information is a rather interesting giving this was only two decades ago. I won’t make any editoral statements, to let you read it in its originality. I Report – You Decide.
(Note: Since I had scanned this document into a readable OCR format, some of the characters didn’t come out as accurate. Steps were taken to ensure that this document is accurate as it was on the original hard copy.)

ASPERGER SYNDROME
Stephen Bauer, M.D . M.P.H.
The Developmental Unit
The Genesee Hospital
Rochester, New York

Introduction:
Asperger Syndrome (also called Asperger disorder) is a relatively new category of developmental disorder, having only been in use for about the past fifteen years. Although a group of children with this clinical picture were originally described in the 1940’s by a Viennese pediatrician, Hans Asperger, it has only been over the past several years that the term has become more widely applied; it entered the Diagnostic and Statistical Manual of Mental Disorders for the first time in the fourth edition published in 1994. Because Asperger syndrome (AS) is a new category with few comprehensive review articles in the medical literature to date, and because it is probably considerably more common than previously realized. I will attempt in this discussion to describe it in some detail and to offer suggestions regarding practical aspects of its management. Students with AS are not uncommonly seen in mainstream educational settings, although often undiagnosed or misdiagnonsed,  so this is a topic of some importance for educational personnel as well for parents
Asperger Syndrome is the term applied·to the mildest and highest functioning end of whats known as the as the spectrum of pervasive developmental disorders (or the autism spectrum.) Like all conditions along that spectrum it is now felt to represent a neurologically-based disorder of development, most often of unknown cause  in which there are deviations or abnormalities in three broad aspects of development social skills, the use of language for communicative purposes and certain behavioral and stylistic characteristics involving repetitive or pervasive features and limited range of interests. It is the presence of these three categories  of dysfunctiong which can range from relatively mild to severe.· which clinically define all of the pervasive developmental from AS through to classic autism.
Asperger syndrome represents that portion of the PDD continuum which is characterized by higher cognitive abilities (at least normal IQ by definition. and sometimes ranging up into the very superior range) and by more normal language function compared to other disorders along the spectrum. In fact. the presence of normal basic language skills is now felt to be one of the criteria for the diagnosis of AS although there are nearly always more subtle abnormalities of speech and language present. Many researchers feel it is these two areas at relative strength that distinguish AS from other forms of autism and PDD and account for the better prognosis in AS. Developmentalists have not reached consensus as to whether there is any difference between AS and what is termed high functioning autism (HFA). Some researchers have suggested that the basic  neuropsychological deficit is different for the two conditions. but others have been unconvinced that any meaningful distinction can be made between them. One researcher. Uta Frith. has characterized children with AS as having “a dash of autism.” This leaves room for some confusion regarding diagnostic terms. and it is likely that quite similar children across the country have been diagnosed with AS. HFA. or POD. depending upon by whom or where they are evaluated. In fact, since the symptoms are milder and less classic in AS. many children who would meet criteria for that diagnosis receive no diagnosis at all and are viewed as “unusual” or “just different”. Actually. many in the field believe that there is no clear boundary separating AS from children who are ” normal but different”  The inclusion of AS as a separate category in the new DSM-4. with fairly clear criteria for diagnosis. should promote greater consistency of labeling in the future.
Epidemiology
The best studies that have been carried out to date suggest that AS is far more common than “classic” autism. Whereas autism has traditionally been felt to occur in about 4 out of every 10,000 children, estimates of Asperger syndrome have ranged as high as 20-25 per 10,000. That means that for each case of more typical autism, schools can expect to encounter several children with a picture of AS (that is even more. true for the mainstream setting. where most children with AS will be found). In fact. a careful, population-based epidemiological study carried out by Gillberg’s group in Sweden, concluded that nearly 0.7% of the children studied had a clinical picture either diagnostic of or suggestive of AS to some degree. Particularly if one includes those children who have many of the features of AS and seem to be milder presentations along the spectrum as it shades into “normal”, it seems not to be a rare condition at all.
All studies have agreed that Asperger syndrome is far more common in boys than in girls. The reasons for this are unknown. AS is fairly commonly associated with other types of diagnoses  again for unknown reasons. including: tic disorders such as Tourette disorder. attentional problems, and mood problems such as depression and anxiety. In some cases there is a clear genetic component, with one parent (most often the father) showing either the full picture of AS or at least some of the traits associated with AS. Sometimes there will be a positive family history of autism in relatives. further strengthening the impression that AS  and autism are related conditions . Other studies have demonstrated a fairly high rate of depression. both bipolar and unipolar, in relatives of children with AS suggesting a genetic link in at least some cases. It seems likely that for AS, as for autism, the clinical picture we see is probably influenced by many factors, including genetic ones. so that there is no single identifiable cause in most cases.
Definition
The criteria for a diagnosis of AS in the new DSM -4 include the presence of:

  • Qualitative impairment in social interaction involving some or all or the following: impaired use of non-verbal behaviors to regulate social interaction, failure to develop age-appropriate peer relationships. lack of spontaneous interest in sharing experiences with others. and lack of social or emotional reciprocity.
  • Restricted, repetitive, and stereotyped patterns of behavior, interests, and activities involving: preoccupation with one or more stereotyped and restricted pattern of interest,  inflexible adherence to specific non-functional routines or rituals . stereotype or repetitive motor mannerisms. or preoccupation with parts objects.

These behaviors must be sufficient to interfere significantly with social or other areas of functioning. Furthermore. there must be no significant associated delay in either general cognitive function, self-help/adaptive skills, interest in the environment. or overall language development.
Christopher Gillberg, a Swedish physician who has studied AS extensively. has proposed six criteria for the diagnosis. elaborating upon the a criteria set forth in DSM-4. His six criteria capture, the unique style of these children, and include:

  • Social impairment=extreme egocentricity, which may include:

–inability to interact with peers
-tack of desire to interact
-poor appreciation of social cues
–socially inappropriate responses

  • Limited interests. preoccupations

–more rote than memorized
-relatively exclusive of other interests
–repetitive adherence

  • Repetitive routines, rituals

–imposed on self, or
–imposed on others

  • Speech and language peculiarities. such as:

–delayed early development possible but not consistently seen
–superficially perfect expressive language * [pen mark, must been figuring out my speech abilities]
–odd prosody, peculiar voice characteristics
–impaired comprehension including misinterpretation of literal and implied meanings

  • Non-verbal communication problems. such as:.

–limited use of gesture
–clumsy body language
–limited facial expression. or inappropriate
–peculiar “stiff” gaze
–difficulty adjusting physical proximity

  • Motor clumsiness

–may not be necessary part at the picture in all cases
Clinical Features
The most obvious hallmark of Asperger syndrome, and the characteristic that makes these children so unique and fascinating, is their peculiar idiosyncratic areas of “special interest”. In contrast to more typical autism. where the interests are more likely to be objects or parts of objects. in AS the interests appear most often to be specific intellectual areas. Often, when they enter school, or even before, these children will show an obsessive interest in an area such as math. aspects at science. reading (some have a history of hyperlexia–rote reading at a precocious age), or some aspect at history or geography, wanting to learn everything possible about that subject and tending to dwell on it in conversations and free play.
I have seen a number at children with AS who focus on maps, weather, astronomy, various types of machinery, or aspects of cars, trains, planes, or rockets. Interestingly. as far back as Asperger’s original clinical description in 1944. the area of transport has seemed to be a particularly common fascination (he described children who memorized the tram lines in Vienna down to the last stop). Many children with AS. as young as three years old, seem to be unusually aware of things such as the route taken on car trips. Sometimes the areas at fascination represent exaggerations of interests common to children in our culture, such as Nina Turtles, Power Rangers. dinosaurs. etc. In many children the areas of special interest wilt change over time, with one preoccupation replaced by another. In some children, however, the interests may persist into adulthood, and there are many cases where the childhood fascinations have formed the basis for an adult career, including a good number at college professors.
The other major characteristic of AS is the socialization deficit. and this,  too,  tends to be somewhat different than that seen in typical autism. Although children with AS are frequently noted by teachers and parents to be somewhat “in their own world” and preoccupied with their own agenda, they are seldom as aloof as children with autism. In fact. most children with AS. at least once they get to school age. express a desire to fit in socially and have friends.  They are often deeply frustrated and disappointed by their social difficulties. Their problem is not a lack of interaction so much as lack of effectiveness in interactions. They seem to have difficulty knowing, how to”make connections” socially. Gillberg has described this as a “disorder of empathy” the inability to effectively “read” others’ needs and perspectives and respond appropriately. As a result. children with AS tend to misread social situations arid their interactions and responses are frequently viewed by others as “odd”.
Although “normal” language skills are a feature distinguishing AS from other forms of autism and PDD. there are usually some observable differences in how they use language. It is the more rate skills that are strong. sometimes very strong. Their prosody-those aspects of spoken language such as volume of speech, intonation, inflection, rate,  etc, is frequently different.  Sometimes the language sounds overly formal or pedantic,  idioms and slang are often not used or are misused, and things are often taken too literally, slang are often not used or are misused, and things are often taken too literally. Language comprehension tends toward the concrete, with increasing problems often arising as language becomes more abstract in the upper grades. Pragmatic or conversational, language skills often are weak because of problems with turn-taking,  a tendency to revert to areas of special interest, or difficulty sustaining the “give and take” of conversations. Most children with AS have difficulties dealing with humor, tending not to “get” jokes or laughing at the wrong time; this is in spite of the fact that quite a few show an interest in humor and jokes,  particularly things such as puns or word games. perhaps hoping to be able to use humor as a way to fit in better socially.
Some children with AS tend to be hyperverbal. not understanding that this interferes with their interactions with others and puts others off. When one examines the early language history of children with AS there is no single pattern–some of them have normal or even early achievement of milestones. while others have quite clear early delays on speech with rapid catch-up to more normal language by the time of school  entry. Frequently, particularly during the first several years. language features similar to those in autism are seen, such as perseverative or repetitive aspects to language use.
Asperger Syndrome Through the Lifespan
In his original 1944 paper describing the children who later came to be, described under his name. Hans Asperger recognized that although the symptoms and problems change over time, the overall problem is seldom outgrown. He wrote that “in the course of development, certain features predominate or recede; so that the problems presented change considerably. Nevertheless,  the essential aspects of the problem remain unchanged. In early childhood there are the difficulties in learning simple practical skills and in social adaptation. These difficulties arise out of the same disturbance which at school age cause learning and conduct problems, in adolescence job and performance problems, and in adulthood social and marital conflicts.”   On the  other hand. there is no question that children with AS have generally milder problems at every age compared to those with other forms of autism. and their ultimate prognosis is certainly better. In fact, one of the more important reasons to distinguish AS from other forms of autism is it’s considerably milder prognosis.
The preschool child. As has been suggested above,  there is no single, uniform , presenting picture of Asperger syndrome in the first 3-4 years. The early picture may be indistinguishable from that of more typical autism. suggesting that when evaluating any young child with autism and apparently normal intelligence, the possibility should be entertained that he/she may eventually have a picture more compatible with an Asperger diagnosis. something that I have seen on a number of occasions. Other children may have early language delays with rapid “catch-up” as they approach school age. Finally. some of these children, particularly the brightest ones,  may have no evidence of early developmental delay except, perhaps, some motor clumsiness. In almost all cases. however, if one looks closely at the child between the age of about three and five years, clues to the diagnosis can be found. and in most cases a comprehensive evaluation at that age can at least point to a diagnosis along the PDD/autism spectrum. Although these children may seem to relate normally within the family setting, when they enter a preschool setting problems are often seen. These may include: a tendency to avoid spontaneous social interactions or to snow very weak, skills in interactions. problems sustaining simple conversations or a tendency to be perseverative or repetitive when conversing, odd verbal responses. preference for a set routine and difficulty with transitions. difficulty regulating social/emotional responses with anger, aggression, or excessive anxiety, hyperactivity. appearing to be “In one’s own little world”, and the tendency to overfocus on particular objects or subjects.
Certainly, this list is much like the early symptom list in autism or PDD. Compared to those children. however. the child with AS is more likely to show some social interest in adults and other children. will have less abnormal language and conversational speech. and may not be as obviously “different” from other children. Areas of particularly strong skills may be present. such as letter or number recognition, rate memorization of various facts, etc.
Elementary school. The child with AS will frequently enter kindergarten without having been adequately diagnosed. !n some cases. there wiil have been behavioral concerns (hyperactivity, inattention, aggression,  outbursts) in the preschool years: there may be concern over “immature” social skills and peer interactions: the child may already be viewed as being somewhat unusual. If these problems are more severe, special education may be suggested. but probably most children with AS enter a more mainstream setting. Often. academic progress in the early grades, is an area of relative strength; for example, rote reading is usually quite good, and calculation skills may be similarly strong, although pencil skills are often considerably weaker. The teacher will probably be struck by the child’s “obsessive” areas of interest, which often intrude in the classroom setting. Most AS children will show some social interest in other children, although it may be reduced, but they are likely to show weak friend-making and friend-keeping skills. They may show particular interest in one or a few children around them, but usually the depth of their interactions will be relatively superficial. On the other hand. I have known quite a number of children with AS who present as pleasant and “nice”. particularly when interacting with adults. The social deficit. when less severe, may be under appreciated by many observers.
The course through elementary school can vary considerably from child to child, and overall problems can range from mild and easily managed to severe and intractable, depending upon factors such as the child’s intelligence level. appropriateness of management at school and parenting at heme. temperamental style of the child, and the presence or absence ot complicating factors such as hyperactivity/attentional problems,  anxiety, learning problems, etc.
The upper grades. As the child with AS moves into middle school and high school, the most difficult areas continue to be those related to socialization and behavioral adjustment. Paradoxically. because children with AS are frequently managed in mainstream educational settings. and because their specific developmental problems may be more easily overlooked (especially if they are bright and do not act too “strange”), they are often misunderstood at this age by both teachers and other students. At the secondary level. teachers often have less opportunity to get to know a child well, and problems with behavior or work/study habits may be misattributed  to emotional or motivational problems. In some settings particularly less familiar or structured ones such as the cafeteria, physical education class, or playground, the child may get into escalating conflicts or power struggles with teachers or students who may not be familiar with their developmental style at interacting. This can sometimes lead to more serious behavioral flare-ups. Pressure may build up in such a child with little clue until he then reacts in a dramatically inappropriate manner.
In middle school. where the pressures for conformity are greatest and tolerance for differences the least, these children may be left out. misunderstood, or teased and persecuted. Wanting to make friends and fit in., but unable to, they may withdraw even more, or their behavior may become increasingly problematic in the form of outbursts or non-cooperation. Some degree of depression is not uncommon as a complicating feature. If there are no significant learning disabilities, academic performance can continue strong, particularly in those areas at particular interest: often, however, there will be ongoing subtle tendencies to misinterpret information, particularly abstract or figurative/idiomatic language. In many cases they will have learning difficulties. and attentional and organizational difficulties may be present.
Fortunately, by high school peer tolerance for individual variations and eccentricity often increases again to some extent. It a child does well academically. that can bring a measure at respect from other students. Some AS students may pass socially as “nerds”, a group which they actually resemble in many ways and which may overlap with AS. The AS adolescent may form friendships with other students ‘who share his interests through avenues such as computer or math clubs, science fairs, Star Trek clubs, etc. With luck and proper management. many of these students will have developed considerable coping skills. “social graces”, and general ability to “fit in” more comfortably by this age. thus easing their way.
Asperger children grown up.  It is important to note that we have limited solid information regarding the eventual outcome for most children with AS. It has only been recently that AS itself has been distinguished from more typical autism, in looking at outcomes. Nonetheless, the available data does suggest that, compared to other forms of autism, children with AS are much more likely to grow up to be  independently functioning adults in terms of employment, marriage and family, etc.
One of the most interesting and useful sources of data on outcome comes indirectly from observing those parents (mostly fathers) of AS children, who themselves appear to have AS. From these observations it is clear that AS does not preclude the potential for a more “normal” adult life. Commonly. these adults will gravitate to a job or profession that relates to their own areas ot special interest,  sometimes becoming very proficient. A number of the brightest students with AS are able to successfully complete college and even graduate school Nonetheless. in most cases they will continue to demonstrate, at least to some extent, subtle differences in social interactions. They can be challenged by the social and emotional demands of marriage. although we know that many do marry. Their rigidity of style and.  idiosyncratic perspective on the world can make interactions difficult. both in and out of the family. There is also the risk of mood problems such as depression and anxiety, and it is likely that,  many find their way to psychiatrists and other mental health providers where. Gillberg suggests. the true, developmental nature of their problems may go unrecognized or misdiagnosed.
In fact, Gillberg has estimated that perhaps 30-50% of all adults with AS are never evaluated or correctly diagnosed. These “normal Aspergers” are viewed by others as “just different” or eccentric,  or perhaps they receive other psychiatric diagnoses.  I  have met a number of individuals whom I believe fall into that category, and I am struck by how many at them have been able to utilize their other skills, often with support from loved ones, to achieve what I consider to be a high level at function, personally and professionally. It has been suggested that some of these highest
functioning and brightest individuals with AS represent a unique resource for society, having the single mindedness and consuming interest to advance our knowledge in various areas of science,  math, etc.
Thoughts on Management in the School
The most important starting point in helping a student with Asperger syndrome function effectively in school is for the staff (all who will come into contact with the child) to realize that the child has an inherent developmental disorder which causes  him or her to behave and respond in a different way from other students. Too often, behaviors in these children are interpreted as “emotional” or “manipulative”, or some other term that misses the point that they respond differently to the world and its stimuli, It follows from that realization’ that school staff must carefully individualize their approach for each of these children: it will not work out to treat them just the same as other students. Asperger himself realized the central importance of teacher attitude from his own work with these children. In 1944 he wrote. “These children often show a surprising sensitivity ‘to the personality of the teacher …They can be taught, but only by, those who give them true understanding and affection. people who show kindness towards them and, yes, humour…The teacher’s underlying emotional attitude influences, involuntarily and unconsciously, the mood and behaviour of the child.”
Although it is likely that many children with AS can be managed primarily in the regular classroom setting, they often need some educational support services. If learning problems are present. resource room or tutoring can be helpful,  to provide individualized explanation and review. Direct speech services may not be needed,  but the speech and language clinician at school can be useful as a consultant to the other staff regarding ways to address problems in areas such as pragmatic,  language. If motor clumsiness is significant, as it sometimes is, the school Occupational Therapist can provide helpful input. The school counselor or social worker can provide direct social skills training, as well as general emotional support. Finally. a few children with very high management needs may benefit from assistance from a classroom aide assigned to them. On the other hand, some of the higher functioning children and those with milder AS, are able to adapt and function with little in the way a normal support services at school.
There are a number at general principles at managing most children with PDD
of any degree in school, and they apply to AS as well:

  • The classroom routines should be kept as consistent, structured, and predictable as possible. Children with AS often don’t like surprises. They should be prepared in advance, when possible, for changes and transitions. including things such as schedule breaks, vacation days, etc.
  • Rules should be applied carefully. Many of these children can be fairly rigid about following “rules” quite literally. While clearly expressed rules and guidelines, preferably written down for the student, are helpful, they should be applied with some flexibility. The rules do not automatically have to be exactly the same for the child with AS as for the rest ot the students–their needs and abilities are different.
  • Staff should take full advantage at a child’s areas of special interest when teaching. The child will learn best when an area of high personal interest is on the agenda.  One can creatively connect the child’s interests to the teaching process. One can also use access to the special interests as a reward for the child.
  • Most students with AS respond well to the use of visuals–schedules, charts, lists, pictures, etc.
  • In general, try to keep teaching fairly concrete. Avoid language that may be misunderstood by the child with AS. such as sarcasm, confusing figurative speech, idioms. etc ., Work to break down and simplify more abstract language and concepts.
  • Explicit, didactic training in strategies can be very helpful, to assist the child gain proficiency in “executive function” areas such as organization and study skills.
  • Insure that school staff outside of the classroom, such as physical education teachers, bus drivers, cafeteria monitors,  librarians, etc ., are familiar with the child’s style and needs and have been given adequate training in management approaches. Often, it is those less structured settings where the routine is broken and . expectations less clear that are most difficult for the child with AS.
  • Try to avoid escalating power struggles. These children often do not understand blind shows of authority and will become more rigid and stubborn if  forcefully confronted. Their behavior can then get rapidly out of control. and at that point it is often better for the staff person to back off and let things cool down.

A major area of concern as the child moves through school is to promote more appropriate social interactions and to help the child fit in better socially. Formal, didactic social skills training can take place both in the classroom and in more individualized settings. Approaches that have been most successful utilize direct modeling and role playing at a concrete level (such as in the Skillstreaming series), By rehearsing and practicing how to handle various social situations, the child can hopefully learn to generalize the skills to naturalistic settings. It is often useful to use a dyad approach where the child is paired with another to carry out such structured encounters. The use of a “buddy system” can be very useful. since these children relate best in a 1-1 setting. Careful selection of a non-handicapped peer buddy for the child can be a tool to help build social skills, encourage friendships, and reduce stigmatization. Care should be taken, particularly in the upper grades. to protect the child from teasing both in and out of the classroom, since it is one of the greatest sources of anxiety for older children with AS. Efforts should be made to help other students arrive at a better understanding of the child with AS, in a way that will promote tolerance and acceptance. Teachers can take advantage ot the strong academic skills that many AS children have,  in order to help them gain acceptance with peers. It is very helpful if the AS child can be given opportunities to help other children at times.
Teachers should be alert to the potential for mood problems such as anxiety or depression, particularly in the older child with AS. Occasionally, medication with an antidepressant may be indicated if mood problems are significantly ‘interfering with the child’s function.’ Although most children with AS are managed without medication (medication does not “cure” any of the core symptoms), there are specific situations where medication can. on occasion. be useful. For example. problems with inattention for academics that are seen in some children can sometimes be helped by stimulant medications such as Ritalin. Occasionally, medication may be needed to address more severe behavior problems that have not responded to non-medical interventions: clonidine has proven helpful in such situations. and there are other options if  necessary.
In attempting to put a comprehensive teaching and management plan into place at school, it is often helpful for staff and parents to work closely together, since parents often are most familiar with what has worked in the past for a given child. It is also wise to put as many details of the plan as possible into an Individual Educational Plan so, that progress can be monitored and carried over from year to year. Finally, in devising such plans, it can sometimes be helpful to enlist the aid of outside consultants familiar with the management of children with Asperger syndrome and other forms of PDD. such as Boces consultants, psychologists or physicians. In complex cases a team orientation is always advisable.