On Ableism…

Recently I discovered the disconnect of using “ableism”. I feel like other words ending with -sit and -ism, not only is the word being devalue as it has become a political cliche; for an example racism and sexism in the overt sense has for the most part disappeared, however covert racism and sexism vis-a-vis internalized sexism (such as men stating they would rather have a male pilot over a female pilot, when flying despite female pilots having documented ability to handle stress if a plane crashes or looses control.)

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5th Grade – Hopeless Romantic, confirmed (Hopeless Autistic)

In late 2018, I finally arrived to the litmus test of what would solidify the Hopeless Autistic status from the late 1990s, just a year before the diagnosis was brought to my attention after SHTF.

In a Facebook Messenger thread of school age friend, of which 2 years worth of conversations was actually printed out at 147 pages, for a discovery. Mind you, the only video chat occurred around this time, in late 2018. Millennials really use Facebook for pics and texts.

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A Crazy Day

In this journal-esque post, I am recording what has been a crazy day.

*sighs*

Earlier this morning, I sent a mass blast to the VIP level leaders of my state about Autism Awareness Month and how things are systematically in the wrong direction.

In the nearly two thousand word memorandum, I outlined not supporting Autism Speaks and the state of Autism in the State of New Hampshire.

The people included were former supports, current supports, management level of my previously mentioned “core” supports, including my weekend respite (who works for the Commonwealth) and the former Commissioner, and everyone else I knew. The mother was not included, due to a potential conflict if she saw the memo. The individuals were blind carbon copied (and obviously these messages aren’t literally blind if you go through deep down the “headers”, but do they care to know that? No.)

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The Sad Story of The Moore Center, part two

In the same week I posted my experiences in a previous life dealing with The Moore Center, the Union Leader ran a story on Saturday through their City Matters columnist about a Bedford family whom their son is about to turn 21 and will be going on a wait list.

The mother, Christine Bodi tells the paper “The system is really broken”

Say that a thousand times over.

In the article, the individual, Andrew is severely autistic in functioning level and therefore he should be able to get services not to long after his birthday because after all the lower functioning are at higher risk, right?

Well you’d think. But The Moore Center (like other families that just wanted a glimmer of hope – once in their lives) would soon crumble as they sent the family the infamous letter stating there isn’t any funds.

As I previously posted, the area agency seems to not cooperate well with the local school districts, and without having a direct connection, how are they supposed to know whose aging out of school system?

Meanwhile the Bureau of Developmental Services is on defense and their publicist gave the paper a non answer thanks to the HIPAA restrictions.

While the Union Leader did say it’s “good deal” for having a public/private system (i.e Bureau funding Area Agencies), some fare better than others.

I don’t want to get too hyper local on this subject, while I did initially post about my dealings with them with skepticism (with hopes they had changed) this report kinda shows how they haven’t that much.

I feel there is a time and a place to feel for others frustrations despite the need to be somewhat selfish. I do this because I don’t want other families or individuals to go through what I went through eight years ago.

The Sad Story of The Moore Center

Originally posted March 18th, 2016

UPDATED: March 31st Typos, Typos and Typos, dammit!

It is typically against my policy on social media to discuss organizations or people by name unless there is notoriety factor and a strong case in favor to do so.

I want to discuss my first hand experiences with The Moore Center (previously known at the time as Moore Center Services, Incorporated) as a one time purpose and used as a historical record of my experiences for others to learn. The reflected accounts were from about 1995 to 2010. (More relevant accounts ranged from 2007 to ’10.) I can’t speak for them today because I do not know personally what is going on day to day as I have not been affiliated with them for years.

What I will say is I have sources who to this day who have had negative experiences or dealings with them. Simply put, The Moore Center is the largest area agency for Medicaid Waiver services for the state of New Hampshire, but acts as a charity organization instead.

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Why Men Love B!tches – Moi’s POV

2023 Note: That book still sells copies 7 years later at the same B&N.

Warning: Bad Language used. Please read with discretion

There’s a book published called Why Men Love Bitches (or something like that.) I found the book a while back at my local Barnes & Noble, and skimmed through it. I took a picture of the cover but can’t seem to find it on my machine or server, but who cares! I don’t remember much of the context; but more on the general message. Or at least if I can remember that as well!

I want to say that I don’t want this site to be all about relationships, but on the same time that subject has been a difficulty that I’ve struggled and still puzzled if that it’s my autism or the world around me that I can’t understand. I know for sure I’ll take a hit for speaking my version of the truth at least in this post…

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Why I avoid Wanting to Work in Ego-Driven Worlds

I wasn’t sure what blog to post it, my professional blog or this one. It’s on the theme of Why I Hate IT.

I don’t like the initials for Information Technology. IT was a broken concept from the beginning. IT’s roots began in the late 1980s when PCs became a mainstream product in corporate or enterprise settings.

There are two types of approaching technology, IS for Information Services or Systems and IT. The former was more focused towards users, focusing on solutions and outcomes and the understanding of how to craft a piece of software for the users.

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How the Hopeless Autistic Began

To sum it up in a paragraph: I had gotten a name of a genetic doctor at Dartmouth/Hitchcock Manchester. From winter to June there was back and forth in backoffice paperwork. After that cat and mouse game ended, we got a date to meet with the doctor on September 1st. Basically the genetics testing was too risky financially as my primary insurance through my mother denies at 13 years and older. The Managed Care Medicaid wouldn’t touch it unless it was denied by the primary insurance provider, and if Medicaid denied it it would’ve been a severe case of SOL. (The story of my life…everything is bleep out of luck!)

Well in the meantime, the doctor suggested a name of Dr. Jennifer McLaren in Lebanon. According to that doctor, she supposedly worked with adults. (I suspect she may work with them if they aged out as children like a grandfathered clause.) Well when I called them, they basically denied me and gave me the infamous advocacy organization, etc.

It was after this run-in with the broken adult special needs system is when I decided of I Can’t Take This Anymore! And this is how The Hopeless Autistic began. Thank you unforgiving “doctors”!