On Reserves (August – September 2023)

Just over a couple weeks taking a 2 night stay in Keene, my grandmother started to develop her issues that resulted her untimely death in late September. For more than 1/2 of August, she had stayed at the nearby hospital. The 2nd stay was for 2 straight weeks going into September. Then not only 4 days later, she got brought via ambulance, then was basically on her death bed, unbegntost to us, then about a week later (would’ve been a day earlier but due to the alleged storm that was Hurricane Lee, the homebound trip via a private ambulance, and little would I know that it would be three days later she’d be gone.

This narrative is not about my grandmother, but I am not also trying to come off as a victim or whining. This story is what happens when you have no one else to fall on, but then you become someone else’s “rock”, being the default manly figure, to a guy that’s already been depleted. Hence, why I refer this to being “on reserves”.

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The Crap that is “Family Supports”

For many years I have been familiar with the “Family Support” system. It’s exactly what you think it would mean, the family about the individual with a disability without the individual’s attention or presence. The siblings and other family members seem to have this obligation that they are supposed to be the only primary support for that individual. So what does that mean? A lot of stress to occur… so where do they go for respite?

Before COVID-19, there used to be annual conferences, again for the protected-class that is “family support” people, caretakers, parents, siblings, etc. For many years, I’ve been in arguments of why the hell the family should be the primary caretaker of a disabled hierarchal child? Where are family friends? Where is a friend-like figure? Where are cousins? Why the hell should families be the only ones?

For them families feeling obligated to take care of the hierarchal disabled child, this could be extremely taxing. As a result then you get parents that become cockier in age, with the dreams they’ll outlive their kids or hope to bury them because they won’t have to worry about who takes care of them.

What if I told you this could also apply to higher functioning people? What if I told you my family thinks they are obligated to take care of me? Can’t have a bae (err a “date” since I don’t even think I’ll be getting a temporary girlfriend at this point), can’t I have a bestie be there during one day a week or some crazy shit? Why is it ones I can’t eff with?

Maybe it’s by design. But I sure as hell hate “family supports” just as I fucking hate “nuclear families”. They can suck it!