The Rough Week

On the fifth week of the New Year, I was scheduled to have a week off to recharge and try to replenish my remains of energy of being the second sole burden to the family. The sane one, the one who thinks and talks constructively and the one that asks good questions, not that I am tooting my horn. This story is a long one because it started rough on Monday for my mother, but ended harder for me when Friday came along.

The issues of other family members are are still strong hot spots in this firestorm of a situation for both just over a year in…and I am depleted

I went to Dover for the first time (the second time I went there was on the outskirts of the city when I was at SLC and we went to the Chilli’s on the south end. It was to see my therapist for a session in person for the first time in over a couple years. On our way, a magnitude 3.8 (originally reading as 4.2) off the coast of York, Maine (20 miles to the state line, and about the same distance to Portsmouth of which where I was going to stay for the week.

I heard it on The Sports Hub, and it’s unusual for a sports format radio station to do news, since the FCC since they don’t force every local station to cover news these days. My mother and I went to brunch after, then started to take the long way to the Port City.

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#TransformationTuesday Self Advocacy = Activism

Corrected on October 4th, to reflect mistake on the name of the “parade” in Concord that occurs on the 5th since the people who lead the organization can’t talk directly!

Because I was out-of-districted in Massachusetts, the only self advocacy I learned was trial-and-error, fumbling and tackling down teachers and management, embarrass them in Section 504 meetings, etc. I was one jaded little teen.

Lots of people I know that vary in this very state are getting ick-ed by the rise of activism masqueraded as self-advocacy

From my understandings, self advocacy was taught on this side of the border more for speaking up for what you need. Self advocacy is an important skill, and sometimes in a political context.

According to people I meet, they often notice my ability to self-advocate, But I can’t speak for others because I used to be a loudmouth ahole, so what do I know?

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Are Activists Missing Something?

Earlier this evening, I was talking to the ol woman, and while I was waiting for our Domino’s order to arrive, I caught her up with the Zoom call with my therapist and mentioned the “political piñata”  and she mention how some people have an Utopian world view of black and brown people, disabled and women would be included in some dreamy way.

But I said something “why is.. it the people in crutches and wheelchairs?”

I understand that the physically impaired people had it really hard, and there is still improvements, but why are they having the cake and eating it too, while the invisibly disabled people are continuously not being “seen”?

In lots of these social justice movements, there is lots of hands up, or lifting up people, but it really begs the question, do they really want to be lifted or are they being propped up for one’s own political gain? Are these activists missing something here? Is there a PR issue with the messaging of their medium?

Also what the hell is “developmental disabilities” in 2024? Are many of these people just being lumped into the physically handicapped or the other way around via other types of dual- diagnosis?

When one really thinks about it, since the Civil Rights movements in the 1960s, we are in the situation where disability rights took much longer, but the disabled groups are broken into two, but the only one that is seen is the one that is more “obvious” and the more subtle, the nerodivergent type is not just singled out implicitly, they are completely shutting us out.

As a really strange example, how would say women feel if they were trying to be seen and the Black community tried to silence them in the 60s? For the present developmental delay that is impacting 1 in 30 people mostly males, and often more vilified than ever before, and with institutional experience of other civil rights movements in the past – why are people like me intentionally singled out, worse blacklisted, worse in a clown filter in the electronic world?

I am the rarity where I don’t use it as my identity but I am so hurt how when the identity is seen to many others as appropriate use, many others use it to shun. Why are we doing this?

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Why I “Broadcast” Self-Desperation and how people cover their a-es

In September of last year, I reached out to a former day program manager’s personal iPhone number who was at that point considered to be a natural support. That individual ghosted-me and never had contact with me. After leaving a message of the tone described in the video, and a year went by after the two unit police welfare check… I realized what really happened.

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