Overprotecting Parents – Not Ethical?

I went to a workshop on “Code of Ethics” by a couple (for a lack of a better word) New York State snobs from the National Alliance of Direct Support Professionals. There were few things I agree with, many I just found not appropriate for the rank and file. Some staff (even run ins as late as the last month) do act pretty “bossy” and come off as hostile and aggressive.

I do not like a hands-off approach allowing an adult client to do whatever they want, because they have to assimilate to the “real world”. While DSPs (known as “caretakers”, etc.) do have duties to say stop someone from harming themselves to others, the problem is that if we put high standards to the bottom, what happens to the top portion?

I come from organizations (educational collaboratives, school districts, area agencies and day programs) where there is no ethical standards. The lack of ethics were not happening in small 2 people towns, no this was in the largest communities North of Boston and the downstate side of NH. They had no moral duty to protect taxpayers from Waste, Fraud and Abuse from department heads wanting to spend some money but couldn’t explain why because of “confidentiality reasons”. The largest Area Agency in this state for autistics and alike runs a lot like a corporate charity but also runs it like it’s an Enron or a Goldman Sachs, but yet despite the reputation in the inside circles, nothing has been done. The area agency is being the area agency.

Above is a primer to the ongoing discussion of “ethics”, but now I want to turn the focus to overprotecting parents. The ones who will manipulate children to their grave. The ones who will let their kids be “safe” and protect their psyche over their literal safety. How come there is no parenting standards for special needs? Why are parents exempt from ethical standards? How come the “professionals” (like psychologists) will drool over their parent’s inability to let them be free, and just admire them for their parenting when the child was very young. The kid grows up, and the “professionals” continue to drool over years old decent parenting. They don’t care to understand that the child is grown up, and they are so arrogant to understand the mother or father is overprotecting their kids and they think its OK.

Well its not!

If you have more than one kid, its better than having a single child. You have no rights to protect them so much to make them an icicle! All you’re doing is making the kid not wanting to do anything that they think may be too risky then you get upset at the kid of why your kid won’t grow or be challenged.

This is where the professional should be showing the parents the mirror and have their autistic-like tendencies be put into the child’s “3 year eval” since parents have no capability to ruining a kids brain.

Unless the NADSP or some other organization turns the tables of “ethics” away from caretakers and more towards the real threat, the parents, and the corrupt white collared hacks at the local school districts.

A Good day

2017 Update: I was in the eye of the storm, as you can tell in later posts going into 2016.

Today was a good day for me.

I accomplished things and started to find the next path.

One doesn’t know what tomorrow will bring if I fall back into a rock and a hard place.

Or if I am in the eye of the storm.

For almost 10 years, my stability of my life has been unstable. I hope it turns around sooner than later.

Lets hope I get a good night’s sleep.

ABA – What happens when they Become Adults?

Applied Behavior Analysis is an apparent practice used for children on the autism spectrum. It consist behavior plans and Excel spreadsheets and possible PivotTables to execute all the data.

I really have no idea because all the questions I’ve previously asked were often given in the same vague fashion similar to your company’s IT Guy You’d Like to Punch at it’s head! They don’t really explain how it works.

It may be because I technically do not have a High School Diploma equivalent to the “normal functioning” people and I can’t understand open ended answers with open ended questions.

But if it works for children, and teenagers, then what happens after their 21st birthday? I seen no day program in my area where they clearly use ABA.

Let’s not let this “good practice” be destroying adults with autistic disorders if it can be prevented.