Tag Archives: Writings

The Hopeless Autistic: When a Day Program Creates Hopelessness

Posted on by

New topic with an old subject title. It’s an ongoing situation, names and locations will be withheld written originally for my named page in December 2019. 

I am currently in a better adult day program to help me be less dependent what some call “the system.” There is no perfect program, no perfect staff, but situations are far from realistic.

I am getting a unsettling sensation that I am getting unfairly pushed out. I have an invisible disability, and because I am not in a wheelchair, I am not needy. I am not disabled-enough!

The Vendor, that I will leave nameless had went through a bunch of changes in the last six months. Change and autism are an oxymoron. This isn’t a standard “change”. These were core support people ether left or got reassigned. Changes in the corner office impacted people I went to for various things. It wasn’t just one person, it was an admin assistant, a mid level manager and a direct support staff that got promoted into entry level management.

All within 2 months. One of the departures was filled in through “attrition” (something that I have not heard since the Financial Crisis in the private sector, or a New Hampshire municipality at the said time.) This to me is raising flags. The next line as this writer who is no longer as naive anymore: “nothing will change.” Well guess what? The staff has changed, became more managerial, and any attempts on my part to try to heal the broken relationship of under 2 years has been spiked by management. I have been the only individual in the “team” who was willing to give another chance to improve the relationship. I waited for several months (because I am generous to give 2 of the 4 months to mgmt because I am a forgiving guy. That’s not sarcasm, that’s me.) And theres been line after line, after line that they will not admit as an excuse.

The situation is more autistic than me. But I am forced to take the slack, get the flack, and I cannot fault management for anything. Everything, 110% is my fault.

Since the summertime, I’ve seen more resources being directed to ones who are physically disabled. For someone whose has a “higher functioning” developmental disability, I think what the management has chosen to ignore is higher intensity of supports that can be argumentatively be equal to that dude in the ‘chair.      

The implied deflections, the lack of a team game (meaning that staff or managers taking responsibility if they screwed up), and the apparent pissing matches, and no staff listening, but cutting me off, or trying to shut me up (loud hum-hums over normal speaking volume of staff), has put strain on others.   My mother is apparently hurting, the reactions and frustrations posted on my Facebook for friends-only to probably ignore me.

I try to learn to “let go” but they are smart enough to know I am trying to do that to punish me in the form of the said actions. It’s truly a damned-if-you-do-damned-if-you-don’t. In 3Q of 2019, I’ve neutered myself so badly, to the point where I just don’t care anymore. The system rewards people if they are so broken – physically. The only way to overcome autistic conditions is to basically break your neck.

THIS IS HOW LOW THINGS ARE HERE. AND I HAVE TO STFU AND MOVE ON. 

During some early mornings I’ve asked myself “My purpose here [other than the mother] is what again?” 

This is an ongoing story, more details to follow once the situation stabilizes, if it does.

#

The Hopeless Autistic: Giving up on Self Advocacy

Posted on by

Originally posted in March of 2018.

The following is my own opinions only and are not reflective of any organization or individuals. Also any influence by any organization or people are not reflective in this post as well. This was from a time and place from my own observations.

I was asked by an out of country commenter what have I done for any contributions while I had been critical of certain self advocates with the infamous “Ableist Script” on Twitter in late 2015. Touching someone that doesn’t want to be touch could be considered as discriminative behavior in their fucked up world.

Anyhow as I responded I was on a planning committee for an annual “family support” conference for a number of years. Located at a couple different resorts over the years on US302 during the end of NH Spring vacation; I left the committee after being heavily burnt out. I was the only member in his twenties, second to two teenagers. I was the only individual with a developmental disability who actively went to a simple and rhetorical committee rubber stamping meeting.

Yeah it was to me a form of advocacy, but did it get me anywhere?

Continue reading →

The Hopeless Autistic: Downgrading the Importance of “Family Support”

Posted on by

Originally written in June 2018

What drives me over the edge is the ridiculous insanity (that is, repeating the same idea and expecting a different result) is the importance of “Family Support”. This “Family Support” is basically all ‘typicals with a one degree connection to someone with a disability not someone specifically with a disability. They are forced to live in a box entitled Self advocates.

Taking out other disabilities and focusing on what this site has been over 2 years, is the ones who have been living with it for life. Why in the hell should the siblings, and other ‘typical family members be the primary caretaker if when the parents pass on?! Why should they have to be the default caretakers? Why should their lives be succumbed by the other family member with a disability?  What about neighbors, family friends, hell even friends to the person with a disability?

Why should the siblings (if they even have one?) put their live on halt to take care of someone severely autistic or other disabilities?

It’s not fair for ether party.

“Family support” is basically an old brand in New Hampshire that was once known for taking down state institutions but is living a dated quality, now just got all political and bashing political parties instead of fixing issues from geriatric Baby Boomers who’s offspring generation has no plans on coming in and helping, unless they want a nice photo op to help them advance their careers in managing “developmentally disabled” people, two or more degrees from that individual.

*

The Hopeless Autistic: The Beginning of the Collapse to the Developmentally Delayed System

Posted on by

I am in the process of porting some of my work at The Hopeless Autistic to this page in a form of consolidating as my advocacy has been for the most part finished since 2016. Over the last year, there was still new developments as one story of one New Hampshirite on the ASD spectrum. Some of the more coherent posts will be ported over later this summer. 

I am not a Steve Jobs.

I didn’t just happen to make a radical prediction that in four years after creating this page that the developmental disability system would ultimately collapse in 2020.

This past week, the State is still dealing with budgeting issues as 2020 in the Fiscal Year sense began on the 1st. It actually made news. In fairness, to put a disclaimer, the area agency featured in this WMUR-TV package is my area agency.

I am not in a position to criticize the area agency directly, as if I do, it would raise red flags as someone who has a big grudge and may be threat to people. Having social defects along with strong views against the contrary can be punishing.

Continue reading →