Tag Archives: 2020 Year of the Hopeless Autistic

“It’s too like Laconia” – Is Community Based Supports a Reversed “Cookie Cuttered” System?

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I’m going to pop a question: Is “Community Based Supports” just a glorified word for a reversed cookie-cuttered system?

I’m not an advocate, but I am active in the special needs community more than I have before. Some families have opted to keep their children or individuals to be in what some will say it resembles of Laconia State School. It’s even scandalous to the point where the Bureau of Developmental Services will question families or agencies because the federal funds are supposed to be used in “community based supports.”

But why in the hell are we telling families what they can or cannot do? Isn’t just as bad if authorities tell every family to put their able bodied child into an institution because that’s a one sized fits all?

The problem with the group-think of the out of state special interest groups, is families can have a “choice” but that “choice” may differ to what the family feels living in their own closed-minded community.

It is very important to focus on the state I live in, and that Pittsburg is very diferent to Salem; just like how Claremont is very different to say Dover. The problem is all the “progressive”, “let’s take down Laconia like places for our own political capital!” doesn’t go well for the entire state.

The progressive movement will refuse to believe any “regressive” agendas (such as lack of training, tolerance or understanding) in actually the largest communities in the state, just an hour north of the Boston, Massachusetts city line.

And that’s the real problem. People can talk all day about forcing other adults to accept autistics, but the problem is you cannot, and will not change a vast majority of adults of how they view developmentally disabled people. 

Also many autistics, or Dev Disabled people, stick to their own group. If they feel comfortable being in their own groups (say a Special Olympics outing/event), then why are you insisting that’s “not good enough”?

Sadly a lot of this agenda comes from the many special interest groups, which I’ll leave nameless, but any of them on US302, NH Route 3 and the side streets of Downtown Concord, which I think you got the picture.

Police, Autism Speaks, and Anti-Autism Agendas

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This blog, I found from a conversation I had with someone on Twitter who was offended by an earlier post on one word I used to describe a significant advocate. (Of which I standby, because people use words to describe things and if they’re unsure, well what other words can they describe…lighten up.)

I want to post something positive from this writer. On the blog, a post last month described their frustrations against a walk at the National Mall in D.C.  As with many of the autistic advocates, they have pushed the same narrative over and over “Autism Speaks doesn’t allow anyone with autism to speak and they let only 4% of the budget to go to families and/or individuals”. This makes people like me sleepy of hearing the same thing over and over and over.

However, these individuals were targeted by police. Let’s quote a paragraph on this issue:

The people who donate to Autism Speaks, by and large, don’t know any of this. I spent the majority of the protest talking to people and handing out informational flyers. Almost all of the people I interacted with were shocked at how poorly Autism Speaks serves autistic people. Others were happy to learn why some people don’t like the organization, as they had been curious. A few people brushed us off entirely. We didn’t press them. Most of our group stood silently, occasionally making friendly gestures.

here’s what gets interesting:

Then, the rally organizers called the police. I don’t know what the Autism Speaks organizers told the officers about us. Given the amount of hostility we faced, it probably wasn’t good. 3 armed police officers were sent to deal with 6 people holding damp cardboard signs. They told us to move to a less visible spot across the street. After a quick discussion with Rachel Best, the leader of the Autistic Self Advocacy Network DC chapter, we decided to comply with the officers’ request. We tried to move to a different location with better visibility. We were told to move again. The second time, we were told that if they saw us again, they would arrest us.

Now lastly, this is how not to advocate:

 This was not my first protest. This was, however, different from any other protest I’ve been to. When I marched with Black Lives Matter and Slutwalk, there were hundreds of us. We filled the streets. We obstructed traffic. I felt powerful. I felt like I was making a difference. Being one of a handful of protesters standing against an event that attracted thousands was demoralizing. I was happy to spend time with other Autistic people, but I couldn’t help feeling some despair. When there are so many of them and so few of us, how can we change anything?

You cannot just block traffic, and act like a brat and be above the rules. What this advocate did in the first two paragraphs are within reason, and why did the police question or threaten arrests? This is one side of a story, there maybe another side.

I wanted to post this because I want to prove the Merrimack, NH Police Department and the Merrrimack, NH Town Council that my advocacy against Autism Speaks (Not “ANTI-Autism Awareness”) was within reason – and I am not one of those people cited above. I don’t care if you are black, a lesbian, severely autistic, suffer with CP, you must follow the rules, and always listen to the cops. If you want to question them, you do it after the fact. Social media and email in my case made my problem worse. In my situation, I was on town right of way, on the sidewalk, but I think what bothered the Chief of Police was I had “a camera mounted on a tripod” that caused him to question me (and insult my town – again with a number of developmentally disabled people) within an hour by Retweeting (and perhaps posting a link on Facebook) to Light it Up Blue. And all emails I’ve sent were professional and didn’t contain threats or inappropriate languages.

If you want to be taken seriously, you must follow what these individuals or what I did. Stay on point, change the narrative at times, and understand that some people may still believe in Autism Speaks and sadly you can’t change their views. All you have to do is move on and hope to find other people who share the same thoughts.

Help from a Doctor that Knows Adult Autism!

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2017 Preface: These sets of concerns had dated over a year before, hence it sits in the 2014 category.

Unlike Asperger’s Syndrome types who claim they have “Aspergers by self-diagnosing”, I for one won’t stoop down such levels. I’ve tried to find a therapist, a doctor, (an MD or dare I say a “PhD”) and there hardly is anyone skilled with autism for adults.

Everything is for “the children” but adults with autism are being just treated the same exact way as the first generation (births between 1987 to 1992/3) because for whatever reason there is a lack of resources for adults. They know what’s happening to “the children” because when the said groups become adults – this is what they will be expecting. So if that is the case, why not wait? And why are you letting the first generation suffer? Why in the hell in 21st Century, could autism been the first case of civil rights of progressive actions unlike Down’s (which took too many centuries too long) to address? And, with all the technology in the world (the Web, Internet, PCs, cable networks, etc.) are we still addressing like its the 1960s, of slow actions, misleading information in the media; why does society have regressive radical opinions like how the 60s was in general?  

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“Ableism”, Trouble Making, and you people have a life?

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2017 Update:  I was on other parts of social media at this time too. There are many people who have higher functioning autism that you can’t tell them and a special-snowflake or a Social Justice Warrior apart. Prior to 2016, ether SJW or special snowflakes were not in the lexicon. 

The common problem with any advocate (including the anti-vaxxers is the ability to run away from their problems from time to time. Being razor sharp on such issues all the time is perhaps the very same reason why there is frivolous cases of “ableism” here and there. 

The problem is so many, they do not have a life. Life other than throwing rocks at opposing’s windows. 

Before I start, I should disclose, that I do feel that I myself, and perhaps others have become a victim of being discriminated by “ableism.” These Asperger’s types have gone so far to make “ableism” to be put on steroids. While there is discrimination, and abuse, there are more healthy ways instead of using University type of language in the tone of anger. I’ll even say for myself, it may not make me go anywhere…which is why I try to redirect the energy to reform. Oh I’m not sure if “reform” is an OK word.

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The Idiocy of Autism Advocates (and what they are missing)

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This was originally posted on my personal/professional blog. It has been adapted for the use on The Hopeless Autistic. Edited on November 11th.

Before I get mislabeled in the comments, I just want to put some level of scrutiny outside the 603 area code in terms of advocacy and autism.

You’ve heard about the anger of the advocates on Autism Speaks already and what they have done. I want to take this on another level and question why they act so arrogantly that there is nothing wrong with them and why mitigating their odd behaviors (different from a full fledged “cure”) may not be a bad idea.

I do blame the autistic community themselves also to create firey riots, but they do it in the packetwaves and in the ether – known as the Web.

I’ve never heard of “#ActuallyAutistic” until the April Autism Acceptance Month, and to this day I have no idea what the hell does that mean. Did someone say they weren’t autistic? Why are you wasting your time and resources to claim you’re really autistic? Because it sounds like you had an identity theft of your emotional and social makeup so you need to basically prove yourself. But if you really have to prove yourself, then why is it so rosey? Then to counter Autism Speaks’ blue color, they suggested to “walk in red”… whatever that means… Red can come off as many as a negative color, by the way.

Sorry autism can’t be glory all day long, nor can it be all gloomy ether. However advocacy should only be done when its the last resort (in my case I’ve been written up by my local police department, telling people to not Light it Up Blue in April for that same dude to retweet LIUB within an hour after the encounter. I for a lack of a better word “played the autism card” when I knew I was vulnerable.) More details on that subject by searching on the site.

To me that’s where advocacy should be, honest, serious, objective, fair (without attacking – like threatenings one’s ID, life or property to themselves or to others) and do it only when there is a need to do so. And not be so angry amongst a group, and be rational. Most of the super high functioning autistics are beyond rational that maybe they should be institutionalized – not because they’re autistic, but being radical moonbat lefists. But I have PDD-NOS so I must be retarded and I’m too simpleton.

Advocacy should be like WSVN’s news format

If it bleeds, it leads.

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Positivity in terms of addressing special needs have really gone no where, and no listens when someone that appears to be able-bodied but can’t explain why they need assistance. Focusing on the negatives goes as far back as the dawn of time.

The other thing that irritates me is the hyper political nature of the super high functioning autistics. They’ll claim Autism Speaks are bullies, but why are they so insistent to continue a couple years old “Twitter bomb” known as #BoycottAutismSpeaks, which the brats will spam and harass people and organizations who follow Autism Speaks on Twitter. If they hate them so much as if they are dead, then why are they keep brining up the dead? It’s no dramatic than some daytime soap opera on the networks (the few that are still on.)

And also, if you have Aspergers like autism, I’m not saying you’re not autistic, the problem is do you know the real spectrum also includes  the ones that can’t speak for themselves? Do you also know that being all happy about your autism will offend parents of non verbal, and very “slow” adult children? And people like me who are too stupid to go to college? (Lets not bring up the ex friend from Lowell who calls anyone outside of Aspeger’s “retards.”)

I see a lot of advocacy and noise against the big cities, but never the little towns. In NH, the Council on ASD has a seat open for the Autistic Self Advocacy Network, but there is no representation, Why? Because these people come off as extreme liberals, too-cool-for little ol NH, they think its so far away from Boston, that there is no need to represent. They also want their trains and buses and they want walkable cities (they are too cool to drive) and they loathe republicans. (I’m not saying Republicans are perfect, but children die in Boston under excessive government control that these “Aspies” pray upon as their religion.)

While I am on ASAN, they’ll attack Autism Speaks for not allowing autistics to speak, but ASAN will not allow anyone other than an autistic to speak on the issue (so paras, doctors, alleged “experts” are basically shut up) its an exclusive club and it’s racist – or dare I say ableist – in its own way. So they complain about Autism Speaks to not allow autistics to speak, but they won’t let anyone outside of an autistic disorder to work for them or have outside perspectives?

Double Standards perhaps?

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My ideal autism organization should advocate people both genders (transgendered is not appropriate for the general autism population for representation), early childhood to elderly, and focus on a wide variety of problems and hold everyone accountable, not just the evil ol Republicans and Autism Speaks.

Let’s see if anyone will expose Jim Watkins and Lauren Thierry to the point they can’t be in broadcast journalism ever again. But the problem is Aspergers or Super High Functioning types hate local commercial TV, so they have no idea what those two people were behind (the Autism Everyday film) and they don’t care about bridges, so they won’t mention the largest throfare in the East Coast, so don’t expect them to mention the George Washington Bridge by name.

The other problem is high functioning autistics are not innovative and they are very repetitive, so its not a total surprise they do the “Autism Speaks won’t allow autistics to speak and Autism Speaks produced a film where mother talked about driving off a bridge” instead of saying “Autism Speaks is lead by a former, clueless media exec who lacks strong communication skills and allowed a film to be produced by couple big market journalists who were well liked in their respective markets and allowed barbaric statements to be said.” Most people who follow business or worked in the media or communications business would know Bob Wright and many people in Boston, Philadelphia or New York who lived there for the time Watkins (and Thierry) worked at such stations would understand. Maybe there should be more research and teach the simple people something or people they can relate to (like a former host of Boston’s Evening Magazine)?

I am really giving the advocacy community the recipe without the patent fees. I’m giving you so many ideas but you choose to be stubborn and attack, attack and attack and force everyone upon will that you must like autistics because you’re special and you think everyone will like you. And in fact your lack of communication skills – I mean effective communication, will make your credibility more questionable.

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Denial by the local Disability Rights Center

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2017 Preface: The actions by the DRC was yet another lesson I learned about authority, the boundaries and the ability that anyone in Concord (as the DRC is a special interest group) can also talk to their fellow people like children. As I gotten beaten up in 2015, I learned the hard way that authorities are as hard as our state’s bedrock, where the state and local government is also part of the “Granite” State…hehehe!

The DRC gets tons of requests blah, blah, blah is a load of crap. Yeah tell me that when I call them and was rushed like it was my fault for not understanding.

The next consecutive denial in the Merrimack NH Police Department debacle was the legal assistance organization in Concord called the Disability Rights Center. The organization is a delusional special interest group that thinks New Hampshire is still progressive in special needs services, and yet there was no such thing is discrimination and racially biased police departments.

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Denial by the Merrimack Town Council

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In the previous posts, I tried to stand by my words, that if the Chief of the Merrimack, NH Police Department wouldn’t reverse the inappropriate Tweet that came from an organization that had previously allowed people to state double-murder suicide, that I’d report him to the Town Council.

To say that my life has been everything but rejection would be an understatement. This “denial” letter came through certified mail by the “Chairman” Nancy Harrington. (I do not know how s/he/it identifies them self because she closes the letter as “Chairman”.)

The letter was addressed to me as “Mr.”, the redacted address piece began with “Mr.” and the opening began with “Mr.” – what in the f*** are these people think, they run Congress? This is a goddamned town council of a small town, why in the hell do people have to refer to each other as surnames unless they are sociopaths and not care for humans and treat the citizens like they are animals?

Unfortunately the robotic, lawyer assisted-type of emails kind makes me think the board does treat their citizens like animals.

Now onto the substance of the letter, “Ms. Harrington” claims that such concerns is a violation of the Town Ordinance because my concerns should be addressed to the Town Manager, and as you can read below, they stand by their woman. In the earlier post where I also called out the Town Manager for improper actions, they said it would be deferred to the their legal counsel with a final decision. Ms. Harrington also instructed me to “forward” any additional evidence to her (i.e. pass papers like passing the buck.)

She told me because its personnel matters, the board is not allowed to give me all the information relevant to this complaint, which is garbage because I wished they could’ve taken this as a public safety concern to all the developmentally disabled population of the Town of Merrimack.

She also expected the citizen to be cooperative and understanding. I think common sense (that isn’t a law) would basically be the opposite. I thought Merrimack people had common sense, but the Town government runs very different than other towns and they are very legalese. They can choose to stop acting legalese, its a choice not a requirement.

Below is the original letter

merrimack letter